Global Commission

to End the Diagnostic Odyssey for Children with a Rare Disease

Global Commission Terms and Conditions of Use

Please carefully read the following paragraphs before accessing and using this website. By using this website, you hereby acknowledge that you have read, understood and agreed, without limitation or qualification, to these Terms and Conditions of Use described below. If you do not agree to the terms discussed here, you should exit this website now.

These Terms and Conditions of Use constitute the entire agreement between you and the Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease (the “Global Commission” or “we”), relating to the information on and your use of the websites at which these Terms of Conditions and Use are posted or linked (collectively, the “Websites”). The Global Commission is a multidisciplinary group of international experts dedicated to progressing pilot programs to address barriers in rare disease diagnosis to improve the lives of children, co-chaired by Takeda Development Center Americas, Inc., (“Takeda”), Microsoft Corporation and EURORDIS - Rare Diseases Europe. By using our Websites, you are acknowledging your consent to these Terms and Conditions of Use. Do not use our Websites if you do not agree to the following Terms and Conditions of Use. The Global Commission reserves the right to modify these Terms and Conditions of Use from time to time. These Terms and Conditions of Use should be read in conjunction with this website’s Privacy Notice.

This website is intended to be accessed from, and the information contained on the website is intended to be used within, the United States of America. We make no representations that this website or materials on our website are appropriate or available for access or use in other countries. If you access this website from another country, you do so on your own initiative and are responsible for compliance with laws applicable to such access. We may revise the terms discussed here at any time without notice by updating this posting. You are bound by any revisions and, therefore, should periodically visit this page to review the current terms that apply to your use of our website.

Intellectual Property Rights

All contents of this website are protected by Copyright and/or other intellectual property rights, and may not be modified, distributed, posted or transmitted without our prior written consent. You may download material from our website, for your own personal, non-commercial use only. No Copyright notices, other intellectual property or legal notices or other identifying information may be removed from downloaded materials. You may not download material from our website for any other purpose without our prior written consent.

Trademarks are the property of their respective owners. Nothing contained on our website should be construed as granting any license or right to use any trademarks or logos.

Submissions of Information

Except as described in our Privacy Notice, any communication or material that you transmit to our site, by electronic mail or otherwise, including any data, questions, comments, suggestions or the like, is, and will be treated as, non-confidential and nonproprietary information, and the Global Commission shall not be required to respond.

The Global Commission may use such communication or material for the purposes described in the Privacy Notice. Further, the Global Commission is free, without payment of compensation to you, to use any ideas, concepts, know-how or techniques contained in any communication or material you send to our website for any purpose whatsoever.

Concerning Your Privacy

We may monitor access to this website. If monitored, the requesting URLs, the machine originating the request, and the time of the request, may be logged for access statistics and security purposes. By using this website, you consent to such general monitoring. Please see this website’s Privacy Notice for further details on how information from the website may be gathered and used.

Third-Party Links

Periodically, our website may contain links to other websites. These links are provided to you only as a convenience, and the inclusion of any link does not imply endorsement by us of the third-party website. We have no control over the content on such third-party websites. We make no warranties or representations of any kind as to the truthfulness, accuracy, currency, completeness of any information contained or compliance with applicable law in such third-party internet sites. We do not take any responsibility or assume any liability for information contained on other websites or for any damages or injuries of any kind arising from such content or information.

Your linking to any other websites is at your own risk, and you are responsible for learning about and complying with the terms of usage and other conditions posted on those websites.

Medical Information/Conditions

Any information posted on our website referencing or related to medical conditions and their treatment is general in nature and is intended only for educational and general information purposes. Should you have a medical condition that may require treatment, or if you have any specific medical questions, promptly contact your health care provider. Nothing on our website is a substitute for professional medical consultation advice. We do not offer medical diagnosis or treatment from our website, and none of the information contained on our website should be construed as providing medical advice or services of any kind.

Always seek the advice of your physician or other qualified health care provider with any questions you may have about a potential medical condition.

Disclaimer

The Global Commission believes that the content of this website has come from reliable sources, but we cannot guarantee the information on this website is accurate, complete or suitable for any purpose. In addition, the Global Commission cannot guarantee that the content of this website has not been affected by technical malfunctions or unauthorized tampering. The content of this website is subject to change without notice. We may alter or delete material from this website at any time.

You agree that your use of this website and its content is at your own risk, and neither the Global Commission nor any party involved in creating or delivering this website shall be liable for damages of any kind that may result from access to, or use of the information contained on, this website, including, but not limited to, any such damages arising from errors or omissions, misprints, out-of-date information, inaccuracies, typographical or other errors appearing on this website, any software that may be downloaded from this website, or any damage to your computer equipment including, but not limited to, any virus that may infect your computer equipment. Furthermore, the Global Commission neither warrants nor represents that your use of any of the contents on this website will not infringe rights of third parties.

THE GLOBAL COMMISSION MAKES NO REPRESENTATIONS OR WARRANTIES, EXPRESS OR IMPLIED, INCLUDING WITHOUT LIMITATION ANY WARRANTIES OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE OR NONINFRINGEMENT, WITH RESPECT TO THE USE OF THIS WEBSITE OR ANY INFORMATION OR SERVICES OBTAINED THROUGH THIS WEBSITE. IN NO EVENT WILL THE GLOBAL COMMISSION OR ANY OF ITS MEMBERS BE LIABLE FOR ANY DAMAGES OR LOSSES OF ANY KIND RESULTING DIRECTLY OR INDIRECTLY FROM ANY USE OF THIS WEBSITE OR DEFECT IN THIS WEBSITE OR ANY INFORMATION CONTAINED IN THIS WEBSITE, INCLUDING BUT NOT LIMITED TO CONSEQUENTIAL, INCIDENTAL OR OTHER INDIRECT DAMAGES.

By using this website, you assume the risk that the information and materials on this website may be incomplete, inaccurate, out-of-date, or may not meet your needs or requirements.

Please note that some jurisdictions may not allow the exclusion of implied warranties, so some of the above exclusions may not apply to you. Check your local laws for any restrictions or limitations regarding the exclusion of implied warranties.

Export of Information

The United States Export Controls laws prohibit the export of certain technical data and software to certain countries, territories and individuals. No content from this site may be downloaded or otherwise exported in violation of United States law.

Website Availability

This website may be unavailable from time to time due to mechanical, technical, software, hardware or third-party vendor failures, updating or construction. The Global Commission cannot predict or control when such downtime may occur and cannot control the duration of such downtime.

Miscellaneous

These Terms and Conditions of Use are governed and interpreted pursuant to the laws of the Commonwealth of Massachusetts, United States of America, notwithstanding any principles of conflicts of law that would dictate the application of the law of another jurisdiction. If any part of these terms is unlawful, void, or unenforceable, that part will be deemed severable and will not affect the validity and enforceability of the remaining provisions. The Global Commission may, at its sole discretion and without notice, revise these terms at any time by updating this posting. This is the entire agreement between the parties relating to the subject matter herein and shall not be modified except in writing signed by both parties or by a new posting by the Global Commission, as described above. If you have any questions about the rights and restrictions above, please contact questions@globalrarediseasecommission.com.

We reserve the right, to the fullest extent permitted by law, to amend either these Terms and Conditions of Use or our Privacy Notice at any time without notice to you other than the posting of an amended Terms and Conditions of Use or Privacy Notice on this website. We encourage you to return to this area to read the most recent version of our Terms and Conditions of Use and Privacy Notice. The personal information you provide on our Websites will be treated in compliance with the Privacy Notice in effect as of the date you provide your personal information to us. However, if we alter our practices in a manner that will affect the treatment of the personal information you have already provided, we will attempt to provide visitors who have registered on our Websites with notice of our new Privacy Notice via e-mail.

Effective Date

This Terms and Conditions of Use is effective as of March 23, 2021.