Global Commission

to End the Diagnostic Odyssey for Children with a Rare Disease

We strive to reduce the time to diagnosis for rare disease patients

News & Updates

February 24, 2021

Global Commission Participation at the Unusual Suspects Conference

February 23, 2021

Global Commission Shares Two-Year Progress Update

January 13-15, 2021

Global Commission Participation at 2021 RE(ACT) Congress & IRDiRC Conference

October 8-9, 2020

Global Commission Presentation at 2020 NORD Breakthrough Summit

August 27, 2020

Op-Ed by Global Commission Co-Chairs Published in STAT News About Impact of Telehealth on Rare Disease Diagnosis

August 24-27, 2020

Global Commission Representation at World Orphan Drug Congress USA 2020

June 18, 2020

Global Commission Presents at DIA 2020 Global Annual Meeting

June 9, 2020

Q&A with Dr. Gareth Baynam Published to CheckRare

May 18, 2020

The Global Commission Announces Update on Pilot Programs and Path Forward at ECRD 2020

April 13, 2020

Dr. Gregory Moore Joins the Global Commission as Microsoft Co-Chair

February 29, 2020

Impact of Diagnostic Odyssey on Rare Disease Patients Shared at NORD Rare Disease Day Event

February 28, 2020

Global Commission Co-Chairs Featured in WEF Agenda Series on Rare Disease Diagnosis

February 28, 2020

Global Commission Featured in Forbes article on Innovation in Combatting Rare Diseases

February 25, 2020

Rare Disease Day Walk in Dubai

February 19, 2020

Diagnostic Odyssey Highlighted at Medics4RareDiseases Symposium

February 7, 2020

Global Commission Presentation at UDNI 8th International Conference on Rare and Undiagnosed Diseases

October 16, 2019

Global Commission Presentation at SMi 9th Annual Orphan Drugs and Rare Diseases Conference

September 23, 2019

Rare Disease Included in the UN Political Declaration on Universal Health Coverage

September 18 - 21, 2019

Global Commission Presentations at European Society of Immunodeficiencies Meeting

September 17, 2019

New Scientific Paper Co-Authored by EURORDIS-Rare Diseases Europe and Orphanet Finds That 149 Rare Diseases Analyzed Affect Around 80% of the Rare Disease Population

April 10 - 12, 2019

Global Commission Representation at World Orphan Drug Congress USA 2019

March 26 – 28, 2019

Global Commission Featured at Microsoft Executive Industry Summit

February 20, 2019

Takeda, Microsoft and EURORDIS release report with action plan to help rare disease community shorten the diagnostic odyssey

February 20, 2018

Shire, Microsoft and EURORDIS form Global Commission to accelerate time to diagnosis for children with rare diseases

News & Media

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